Will is doing "OK." That's what one of our Dr's told us. After he was born they expected to finding bleeding in his head and didn't. We really thought we were past that concern but last weekend after Will pulled out his breathing tube they did a head ultrasound and found a level 3 bleed (they grade them from level 1-4, 4 being the worst). This now adds all kinds of concerns to our growing list. We're watching his head for swelling and will cross that bridge when/if we get there.
Our other main concern are his kidneys. He's been on a crazy cycle where they'll work and then they'll stop and then they'll pick up again. During the non-working time he retains fluid (edema) and gets all puffy. It's so sad to see him that way. They think he weighs a little over a pound now but with all the water weight about 2 lbs. (Don't think I don't try to encourage him to go, I often stand over him saying "think about waterfalls Will, tinkle, tinkle, running water, rivers, etc." I've also threatened to put his hand in warm water. I think it works pretty well.) The Dr's and nurses have been working with the meds to find what helps him. Today he is going pretty well so we pray that it'll continue. (Who knew you could get so excited about someone going to the bathroom?)
This was taken last night, Feb. 28. He's gone a lot but still needs to keep going!
This is one of his "not going" days, Feb. 22
We are still taking it one day at a time and loving every minute we get to be with him. He is such a fighter and we know that his faith is amazingly strong. Thank you to all those who are praying for him and please know that your prayers are being answered; he's a month old!!!
7 comments:
Thinking of you!!! Hang in there!!
He is looking much bigger - and when I say that I'm not referring to the "not going day" picture. What a handsome 1 month old!!
Thanks for the update and pictures! It's fun to see his growth - it looks like his skin is doing better! :) What a cute little nephew I have!
Will sure is a cute little guy! Thank you for posting the pictures and writing on your blog. We pray for him every day...and his Mommy and Daddy! We love you!
What a trooper! We can't wait to see him in person!
1 month old that is awesome!... you are in our thoughts and prayers.
Rachel forwarded me your blog because I was asking so much about how little Will was doing. :) (I'm Paul's sister.) I just wanted to let you know how amazing he is and that we are thinking about you and praying you and your family.
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